Jace
Tuesday, August 2, 2011
Thursday, July 21, 2011
From Gotcha to Keep on Pressing..
one year (to the day) later...and here we are...a God given, blessed family! One year ago today I held my precious son in my arms for the first time in that cold, impersonal waiting room just off the lobby. The memory of his facial expression as he looked at me will be etched into my mind forever...
I can't believe a whole year has passed. Jace has grown 3 inches...his weight has only increased by a few pounds, but he is changing constantly. When he came home last year, he couldn't climb stairs. Now, he runs up and down them without effort. He couldn't jump, or hop on one foot. Now, he is leaping off of furniture. He couldn't hear. Now, he signs to me when the batteries are dead in his cochlear implant. He continues to excel in sign language. He loves school, adores his siblings, and tells me he loves me without prompting. This little boy continues to be a true testimony to God's provision and love. If there is ANY message I'd like to plant, it is this:
Please, please listen to that still, small voice that speaks to your heart. It just may be your Creator whispering in your ear. It just may be a glimpse of the plan He has masterfully created for you and your life. Please try and be obedient to the gentle prompting of the Holy Spirit inside of you. I am no expert of doctrine. I have no college degree. I can't even properly quote scripture. But I have seen bits and pieces of the Lord. I have seen His marvelous plan unfold in my life...and I have seen the fruitfulness of obedience. Oh, sure I've suffered the ramifications of my rebelliousness-I've not always been obedient. But I know my Savior, and I know He has already suffered the consequences on my behalf. I've accepted His love and mercy and forgiveness.
If there is any hope within me, it is in the Lord....I pray this day that all who read will feel the same...
In Christ Alone,
The Pierro Family
I can't believe a whole year has passed. Jace has grown 3 inches...his weight has only increased by a few pounds, but he is changing constantly. When he came home last year, he couldn't climb stairs. Now, he runs up and down them without effort. He couldn't jump, or hop on one foot. Now, he is leaping off of furniture. He couldn't hear. Now, he signs to me when the batteries are dead in his cochlear implant. He continues to excel in sign language. He loves school, adores his siblings, and tells me he loves me without prompting. This little boy continues to be a true testimony to God's provision and love. If there is ANY message I'd like to plant, it is this:
Please, please listen to that still, small voice that speaks to your heart. It just may be your Creator whispering in your ear. It just may be a glimpse of the plan He has masterfully created for you and your life. Please try and be obedient to the gentle prompting of the Holy Spirit inside of you. I am no expert of doctrine. I have no college degree. I can't even properly quote scripture. But I have seen bits and pieces of the Lord. I have seen His marvelous plan unfold in my life...and I have seen the fruitfulness of obedience. Oh, sure I've suffered the ramifications of my rebelliousness-I've not always been obedient. But I know my Savior, and I know He has already suffered the consequences on my behalf. I've accepted His love and mercy and forgiveness.
If there is any hope within me, it is in the Lord....I pray this day that all who read will feel the same...
In Christ Alone,
The Pierro Family
Sunday, July 17, 2011
Tuesday, July 12, 2011
Milestone!
This morning at breakfast I turned on the usual PBS cartoon channel for Jace as he ate and waited for the school bus. While he was eating, I put his CI device on him, the usual green light flashing letting me know it's working. Several minutes later, Jace signed to me that his device was 'off'. I looked for the green lights and sure enough, the batteries were dead...I was SO excited to know that Jace REALLY DOES HEAR! And he knows the difference! Sure, he doesn't understand anything yet, or know what sound is....but this is a HUGE start!
Signed,
Proud Momma
Signed,
Thursday, July 7, 2011
Jace's 3rd Activation
...silly boy...although he makes some facial responses when she turns up the sound, one video captures the surprised look when she turns OFF the sound. When the sound is off, he doesn't want to wear the device. THAT IS WHY HE WAS ALWAYS TAKING IT OFF AND HIDING IT>>>DUH, MOM!!! I thought it was because he didn't WANT to hear the sounds. I can't wait to begin his rehab with the Listening Center!
The new videos are on the YouTube sidebar to the right of this page. Click on it and when the page comes up, click on 'spierroful' at top right hand corner. All of his videos are there....
The new videos are on the YouTube sidebar to the right of this page. Click on it and when the page comes up, click on 'spierroful' at top right hand corner. All of his videos are there....
3rd Activation
Thursday, June 30, 2011
Cochlear Implant Activated
First Activation appointment!
He goes for his 3rd activation on July 6th. I hope to do a better job at updating this blog in the future...smile...
Wednesday, May 18, 2011
Jace's CI Surgery
The CI surgery went GREAT! Here he is before playing on the floor of the OR prep room.
The orange bucket is his--in it he chose to bring a stuffed lion, a car, and a toy gun. The nurses were super sweet to him, and seemed to be able to communicate just fine. One wanted to be his 'girlfriend'...he smiled at that.
When it was finally time for surgery, I walked him into the OR, on my hip. He was a little curious and even more cautious as we stepped into the cold room. In the OR were about 6 or 7 people in blue scrubs with masks. They took one look at him with that toy gun and melted. Of course I had to be my theatrical self and EXAGGERATE the fact that 'all his friends were here'...all while I was wearing a full-bodied sterilized white( bunny suit) scrub and an ever so flattering OR hat.
He laid down on the table and let them put the mask on him. His eyes shown that he was scared but my eyes pretended that it wasn't so scary. My silly faces seemed to soothe him as he drifted into sleep.
Three hours later, the doctor came out to tell us that everything went incredibly well. He told us that he had high hopes for 'that little guy'. He said that Jace was 'gonna sail' through the next years with having his new ear. I couldn't wait to see him and hold him. Poor thing had no idea what he would wake up to.
He fought the waking after anesthesia. It was hard to comfort him. He couldn't wake up his eyes and of course he couldn't hear anything. I wonder what he was thinking? I cannot imagine. The nurses let me just hold him and rock him as he cried. As soon as he recognized me, he calmed down into a whine. After about 10 minutes, a nurse rubbed a popsicle over his lips and that did the trick!!
Here he is after a nice bath and a lot of food!
Thanks for all your prayers and support! I can't wait until June 13 and 14. This is when they turn on his new device! I can't wait to film it and show you too!!!!
When it was finally time for surgery, I walked him into the OR, on my hip. He was a little curious and even more cautious as we stepped into the cold room. In the OR were about 6 or 7 people in blue scrubs with masks. They took one look at him with that toy gun and melted. Of course I had to be my theatrical self and EXAGGERATE the fact that 'all his friends were here'...all while I was wearing a full-bodied sterilized white( bunny suit) scrub and an ever so flattering OR hat.
He laid down on the table and let them put the mask on him. His eyes shown that he was scared but my eyes pretended that it wasn't so scary. My silly faces seemed to soothe him as he drifted into sleep.
Three hours later, the doctor came out to tell us that everything went incredibly well. He told us that he had high hopes for 'that little guy'. He said that Jace was 'gonna sail' through the next years with having his new ear. I couldn't wait to see him and hold him. Poor thing had no idea what he would wake up to.
Here he is after a nice bath and a lot of food!Alex and lil brother fell asleep
the next day after a movie.
the next day after a movie.Day three. I removed the bandage and cleaned the wound. It is healing so nicely!!
Thanks for all your prayers and support! I can't wait until June 13 and 14. This is when they turn on his new device! I can't wait to film it and show you too!!!!
Monday, May 9, 2011
El-Elyon, Hear My Prayer...
...and so the day is coming. The day I prayed for. The day I dreamed of. And yet, the day I can't help but worry about. Oh, I know in my heart that God is in control. In fact, I know Jehovah-Rapha. I have witnessed His touch, His power, and His healing. So tell me then, why am I constantly worrying over this? Why am I not the trusting, faithful, and quiet daughter of Elohim? Why do I not pray about it and leave it to Jace's Creator?
Because in my flesh, I know that a mere doctor is going to drill hole into my baby's skull. I've seen the CAT scan and how closely the facial nerve lies to the cochlea. Sure, I've heard the surgeon tell me that he has 'plenty of room' in my baby's head to not 'hit' that nerve that may cause paralysis. I've heard him tell me how successful this type of surgery is. I've spoken with the audiologist, the psychiatrist, the speech therapist...the list goes on. I've researched the internet until my brain was overwhelmed. I've talked to others who've had the surgery and tell me that is SO worth it. Nonetheless, I sit here and fret. About the surgery. About the recovery. About the ENTIRE decision I've made for my son who has NO idea what is about to happen. And suppose...just for a moment...that something bad DOES happen? Here I am, making a life altering decision for Jace without his opinion! Without his approval! Without any knowledge of his whatsoever! Suppose he LOVES a silent world. After all, he is SO happy. ALL OF THE TIME! What if he hates the sound of people talking on the street? Or background noise? What if he doesn't want to hear a car horn...or a siren...or WOSRE... the filth that so frequently comes from a mouth without a conscious....
But what about the beautiful things that he has missed out on hearing? Like the birds in the morning-calling to a darkened world-to arise and greet the sunshine! Or the rhythmic sound of raindrops that falls on the window as we settle in for a nap...the giggle of a baby...the 'pop' of a toaster...the VOICE of a momma telling him that she LOVES her baby boy. Oh, how I wait for the day that Jace hears my voice! Will it be a whisper? Or will it be a drawn out, 2 syllable 'Jaa-ace'? It doesn't matter, does it? He will hear my voice! And it is my voice!...I pray he will embrace it! Even the sheep know the voice of the Shepherd! And so the day is coming...
Please, Adonai...let me hear Your voice!!
Because in my flesh, I know that a mere doctor is going to drill hole into my baby's skull. I've seen the CAT scan and how closely the facial nerve lies to the cochlea. Sure, I've heard the surgeon tell me that he has 'plenty of room' in my baby's head to not 'hit' that nerve that may cause paralysis. I've heard him tell me how successful this type of surgery is. I've spoken with the audiologist, the psychiatrist, the speech therapist...the list goes on. I've researched the internet until my brain was overwhelmed. I've talked to others who've had the surgery and tell me that is SO worth it. Nonetheless, I sit here and fret. About the surgery. About the recovery. About the ENTIRE decision I've made for my son who has NO idea what is about to happen. And suppose...just for a moment...that something bad DOES happen? Here I am, making a life altering decision for Jace without his opinion! Without his approval! Without any knowledge of his whatsoever! Suppose he LOVES a silent world. After all, he is SO happy. ALL OF THE TIME! What if he hates the sound of people talking on the street? Or background noise? What if he doesn't want to hear a car horn...or a siren...or WOSRE... the filth that so frequently comes from a mouth without a conscious....
But what about the beautiful things that he has missed out on hearing? Like the birds in the morning-calling to a darkened world-to arise and greet the sunshine! Or the rhythmic sound of raindrops that falls on the window as we settle in for a nap...the giggle of a baby...the 'pop' of a toaster...the VOICE of a momma telling him that she LOVES her baby boy. Oh, how I wait for the day that Jace hears my voice! Will it be a whisper? Or will it be a drawn out, 2 syllable 'Jaa-ace'? It doesn't matter, does it? He will hear my voice! And it is my voice!...I pray he will embrace it! Even the sheep know the voice of the Shepherd! And so the day is coming...
Tuesday, May 3, 2011
Saturday, April 16, 2011
Random Photos
mean face
silly face
AvaGrace, Jace and our finch
Chick-fil-a
still mastering pizzaNot much happening. Waiting for May 12th for the first cochlear. I'm feeling pretty at peace with the whole surgery thing for now. I am sure that as time approaches, the anxiety will as well. I have many videos to upload but I'm having trouble with it on blogspot. Gotta get Daddy to help me! But the biggest news for today is: Jace has grown 3 INCHES since he has come home!!!!!!!
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