I can't wait to post pictures so that you all may see Jace's expressions! But I will have to wait until I get home because I didn't bring my laptop! Grrr...so I am typing from my phone--please excuse the typos!!
Today we are in Disneys Epcot. We are waiting for Ron And the girls to get off of test track. I'll keep you updated so stay tuned!!
Jace
Monday, November 29, 2010
Sunday, November 21, 2010
What I'm Thankful For...
Alex was my first born. I was 28 and very self-centered. I wanted a baby but didn't think I had what it took to be a mom. Until the moment she was placed in my arms. It was the very moment our eyes locked- that look of curiosity, overwhelming love and joy-in both of us, that changed my life forever. It was Alex who the Lord chose to draw me into the everlasting awe that I have for Him to this day.
These are the blessings I am thankful for. All of my children.
...May they glorify You in all they do in this world each and every day, Lord...
Thursday, November 11, 2010
November Happenings
No much to update. Jace is still battling this skin infection? foliculitis? dermatitis? Three different dr visits and $100 in copays later, we still can't get a definitive answer. However, the topical steroid creme IS working, thank GOD...It is still covering his body but to a lesser degree. More spots are fading daily.
He has started school on Mondays, Tuesdays and Wednesdays--and LOVES it. Loves the bus, the drivers, the teacher, the singing and games...all of it. He happily jumps out of bed in the mornings to get dressed and start his days. I wonder what he thinks on Thursdays and Fridays when it's just him and me hanging out. On those days he's busy helping me clean, do laundry, and go for wagon rides. He loves it outside too. Can't wait to take him camping next summer!
We leave for Disney World in two weeks....to see his reaction to all of the visual stimulation and fun there will be absolutely priceless! His brother and sisters are excited for him to see it too.
Jace still loves to kiss....Finally, Nicholas caved and actually lets him do it. For months he was completely adamant in his refusal to accept a kiss from a boy-brother or otherwise! We convinced him that it's ok because Jace's is a baby, not a 'big boy' like Nicholas (wink, wink). It worked.
Next week we have another appointment with JH Cochlear Center to proceed with the necessary steps pre-surgery. He will be fitted for hearing aids (which will do nothing), have a speech therapy session, and other auditory tests. We had to put things on hold until these bumps went away! TWO WEEKS of itching, scratching, oatmeal baths, calamine lotions and sleepless nights....Grrr....BUT '...joy comes in the morning...', right?
We leave for Disney World in two weeks....to see his reaction to all of the visual stimulation and fun there will be absolutely priceless! His brother and sisters are excited for him to see it too.
Jace still loves to kiss....Finally, Nicholas caved and actually lets him do it. For months he was completely adamant in his refusal to accept a kiss from a boy-brother or otherwise! We convinced him that it's ok because Jace's is a baby, not a 'big boy' like Nicholas (wink, wink). It worked.
Next week we have another appointment with JH Cochlear Center to proceed with the necessary steps pre-surgery. He will be fitted for hearing aids (which will do nothing), have a speech therapy session, and other auditory tests. We had to put things on hold until these bumps went away! TWO WEEKS of itching, scratching, oatmeal baths, calamine lotions and sleepless nights....Grrr....BUT '...joy comes in the morning...', right?
Tuesday, November 2, 2010
Chicken Pox....or Something Else?
You tell me...
Can't get doctors to agree...one says folliculitis and the other says chicken pox. All I really know is that Jace is one itchy little boy. He is scratching all day, poor thing. It started out on his back by the top of his pull-up. I really thought it was bug bites; flea, bed bugs--who knows. Then it traveled up the back to his chest. From there to his neck and hair line. He even had a blister on his tongue. Now he is covered pretty much all over but it still seems mild to me-there aren't any other 'blisters' but they do scab over. I am keeping him home just in case it is chicken pox and I am treating it likewise.
We are proceeding with the cochlear implant planning, but not sure where just yet because of insurance reasons. I will keep you posted on the process. We meet again with Hopkins for hearing aid testing (waste of time yet required by law), audio skills and speech next Tuesday. Looking forward to it!!
xo,
Shannon
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